No Man's land Gender bias and social constructivism in the diagnosis of borderline personality disorder.pdf

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Taylor & Francis Inc.
ISSN: 0161-2840 print / 1096-4673 online
DOI: 10.1080/01612840500312753
NO MAN’S LAND: GENDER BIAS AND SOCIAL
CONSTRUCTIVISM IN THE DIAGNOSIS OF
BORDERLINE PERSONALITY DISORDER
Pamela Bjorklund, Ph.C., RN, CS, PMHNP-BC
University of Minnesota, Minneapolis, Minnesota, USA and
The College of St. Scholastica, Duluth, Minnesota, USA
The literature on borderline personality disorder (BPD),
including its epidemiology, biology, phenomenology, causes,
correlates, consequences, costs, treatments, and outcomes is
vast. Thousands of articles and books have been published.
Because the true prevalence of BPD by sex (gender) in the
general population is still unknown, the important question
of why women, rather than men, are more frequently
diagnosed with BPD remains largely unanswered—despite
current evidence for the origin of personality disorder in
genetics and neurobiology, and despite recent suggestions
that biased sampling is the most likely explanation for
gender bias in the diagnosis of BPD. This paper reviews
selected literature on (a) the epidemiology of BPD,
(b) gender bias in the diagnosis of BPD, and (c) the social
construction of diagnosis, particularly the diagnostic entity
labeled “Borderline Personality Disorder.” It attempts a
synthesis of diverse, multidisciplinary literature to address
the question of why women outnumber men by a ratio of 3:1
in the diagnosis of BPD. It rests on assumptions that (a) to
varying degrees sociocultural factors inevitably play a role
in the expression of disease conditions, and that (b)
personality disorders, including BPD, have cultural
histories. It also rests on the belief, for which there is
considerable scholarly support, that the phenomenon called
BPD has multiple, complex, interactive, biological,
psychological, and constructed sociocultural determinants.
Address correspondence to Pamela Bjorklund, The College of St. Scholastica, 1200 Kenwood
Avenue, Duluth, MN 55811-4199. E-mail: pbjorklu@css.edu
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Issues in Mental Health Nursing , 27:3–23, 2006
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P. Bjorklund
Nurses must understand the phenomenon at this level of
complexity to provide appropriate care.
FROM THE INSIDE OUT
‘It’ has a name, but the condition is characterized by suffering of
such quality and magnitude that it cannot be clearly articulated. Its ori-
gins are largely preverbal (Adler & Buie, 1979; Gunderson, 1984, 2001;
Kernberg, 1975, 1996; Masterson, 1976, 1988, 2000). It is the sort of
suffering from which suicide seems the only escape. Indeed, the im-
pulse to suicide or self-harm is one of its defining characteristics. It is an
unparalleled poverty of soul and self that leaves its possessor bereft of
identity, alone, and empty in the midst of crowds and plenty, self-hating
to the point of viewing self-extermination as deserved. The annihilatory
threat of abandonment fuels frantic attempts to connect—usually with
those guaranteed to leave. Relationships are doomed. There is no sat-
isfactory distance from others. Distance is too close or too far. There
is no satisfactory level of environmental or interpersonal stimulation.
Stimulation is too much or too little. Here, there can be no Goldilocks .
Nothing is “just right,” and nothing soothes for long—not food, drink,
company, sex, or spending. Desperate attempts to relieve the distress
drive others to distraction. However, when others hate them as much as
they hate themselves, at least they are no longer alone. Someone finally
feels what they feel.
Paradoxically, its pain is deep and dark, both transient and unrelent-
ing, but purposeful and meaningful. Such pain can provide form and
substance to an easily fragmented, insubstantial, and ultimately illusory
core self, thus constituting an identity of sorts—but not really and not
for long. Self-destructive behavior patterns—evidence of this fragmen-
tary, false self—offer protection from feeling “bad” at the expense of a
meaningful and fulfilling life (Masterson, 1988). Sooner or later, life is
so chaotic it seems there is no life left worth living. Most live on anyway
as struggling survivors—their very existence a tribute to the tenacity
of the human spirit, although everyday life feels far from triumphal. A
fortunate few actually get helpful treatment and forge that elusive “life
worth living.” Some die.
FROM THE OUTSIDE IN
‘It’ is called borderline personality disorder (BPD). It is one of ten
personality disorders included in the Diagnostic and Statistical Manual
Bias in Diagnosing Borderline Personality Disorder
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of Mental Disorders ( DSM-IV-TR ; American Psychiatric Association
[APA], 2000), which is a taxonomy of psychiatric disorders supported
by an extensive empirical foundation and pervasively used as a guide to
the clinical practice of psychiatry in the United States. Its curious name
reflects the initial confusion of both clients and caregivers who struggled
to understand life stories that were perplexing, paradoxical, inconsistent,
contradictory, and dominated to some degree by psychological difficul-
ties that confront us all (Masterson, 1988). In fact, the themes evident
within these struggles reflected social trends and psychological themes
in the culture of the United States at large, including a growing sense of
social isolation; the dissolution of social structures that lent coherence
to self-identity (along with the emergence of social customs that ag-
gravated instead of remediated problematic parent-child relationships)
(Millon, 2000); emphasis on the self to the exclusion of others; fear
of abandonment; difficulties with intimacy and relationships, and with
creativity and self-assertion (Masterson): “To cover [the] confusion, we
diagnosed these patients as ‘borderline’ because they were sicker than
the neurotic but not sick enough to be classified psychotic. They were
on the border, somewhere in between. Although this waste basket term
seemed appropriately descriptive, it really said more about our ignorance
on the subject than about what was wrong with the patient” (p. viii).
According to DSM-IV-TR , the essential feature of BPD is a pervasive
pattern of impulsivity and instability of interpersonal relationships, self-
image, and affect that begins by early adulthood and is present in a variety
of contexts. Five of nine criteria must be met for diagnosis, including
“frantic” efforts to avoid abandonment; a pattern of unstable and intense
interpersonal relationships characterized by alternating idealization and
devaluation; identity disturbance (i.e., markedly and persistently unsta-
ble sense of self); impulsivity in at least two potentially self-damaging
areas (e.g., sex, spending, binge-eating, or substance abuse); recur-
rent suicidal and/or self-mutilating behavior; affective instability due
to marked reactivity of mood; chronic feelings of emptiness; inappro-
priate, intense anger; and transient, stress-related paranoid ideation or
dissociative symptoms (APA, 2000, p. 710). It is associated with sig-
nificant psychiatric mortality and morbidity. Approximately 10% of in-
dividuals diagnosed with BPD will eventually commit suicide (Paris,
1993; APA). Not long ago, people with BPD were considered untreat-
able. Today, the research on psychotherapeutic efficacy (APA, 2003;
Fonaghy & Roth, 1996; Koerner & Dimeff, 2000; Nathan & Gorman,
1998) points to two approaches—psychoanalytic/psychodynamic ther-
apy and dialectical behavior therapy (DBT)—as most helpful in treating
BPD. The literature on both is extensive and growing and is not being
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P. Bjorklund
reviewed here. Suffice it to say there is now ample documentation to
support real hope that persons with borderline personality disorder can
have lives worth living, learn to share those lives with others in ways
that are healthy, straightforward expressions of their deepest needs and
desires, and in so doing find fulfillment and meaning (Masterson, 1988).
BACKGROUND
Curiously, approximately 70–77% of those diagnosed with BPD are
female (APA, 2000; Swartz, Blazer, George, & Winfield, 1990; Widiger
&Weissman, 1991), which begs the question of how culture affects both
the prevalence and manifestation of the condition. Clearly, judgments
about personality functioning must take into account an individual’s
ethnic, cultural, and social background, as well as the gender ideologies
that shape behavior (APA; Sargent, 2003). Medical anthropologists have
addressed such topics as the culture of biomedicine, the cultural shap-
ing of psychiatric classification, the multiple meanings of body changes
in health and illness, power differentials in doctor-patient relationships,
and cultural variation in conceptions of normality and abnormality (Sar-
gent). Yet few reliable cross-cultural studies of severe personality dis-
order exist (Akhtar, 1995), and there is scant anthropological literature
that directly focuses on either BPD or the self-injurious behavior that
characterizes it (Sargent). Similarly, sociologists have examined sex bias
in psychiatry generally (Busfield, 1989); gender differences in rates of
mental illness as evidence for the social organization of knowledge in
patriarchal societies (Smith, 1990); the ethno- (e.g., cultural) psychol-
ogy that underlies psychiatric classification (Gaines, 1992); the nature of
diagnosis and illness as socially constructed (Brown, 1995); the growth
of psychiatric diagnosis as a function of the remedicalization of the
discipline of psychiatry (Rogler, 1997); and problems with the reliabil-
ity and validity of diagnoses of personality disorder generally (Pilgrim,
2001). But rarely have sociologists focused specifically on BPD, with
the exception of Wirth-Cauchon (2001), who has presented a social con-
structivist account of the borderline diagnosis as the medicalization of
the self-destructive feelings and behaviors of women “that lie at the ex-
treme end of a range of responses to gender contradictions and violence
in late modern society” (p. 211).
PURPOSE
The literature on BPD, including its epidemiology, biology, phe-
nomenology, causes, correlates, consequences, costs, treatments, and
Bias in Diagnosing Borderline Personality Disorder
7
outcomes is vast. Thousands of articles and books have been published.
Because the true prevalence of BPD by sex in the general popula-
tion is still unknown, the important question of why women, rather
than men, are more frequently diagnosed with BPD largely remains
unanswered—despite current evidence for the origin of personality dis-
order in genetics and neurobiology (Cloninger, 2004; Siever, 2003;
Skodol, Siever, Livesley, Gunderson, Pfohl, & Widiger, 2002; Teicher,
Andersen, Polcari, Anderson, Navalta, & Kim, 2003), and despite recent
suggestions that biased sampling is the most likely explanation for gen-
der (sex) bias in the diagnosis of BPD (Skodol & Bender, 2003). This
paper reviews selected literature on the epidemiology of BPD, gender
bias in the diagnosis of BPD, and the social construction of diagnosis,
particularly the diagnostic entity labeled “Borderline Personality Dis-
order.” It attempts a synthesis of diverse, multidisciplinary literature to
address the question of why women outnumber men by a ratio of 3:1 in
the diagnosis of BPD. It rests on assumptions that to varying degrees,
sociocultural factors inevitably play a role in the expression of disease
conditions and that personality disorders, including BPD, have cultural
histories. It also rests on the belief, for which there is considerable schol-
arly support, that the phenomenon called “Borderline Personality Disor-
der” has multiple, complex, interactive, biological, psychological, and
constructed sociocultural determinants.
LITERATURE REVIEW
Epidemiology of BPD
Etiology
The etiology of BPD has been the focus of clinical interest for
approximately 30 years. The literature related to its determinants is vo-
luminous and was systematically reviewed by Zanarini and Frankenburg
(1997) and Zanarini (2000), who discussed six main conceptualizations
of the term “Borderline;” outlined the seminal theories of its pathogene-
sis; reviewed previously studied etiological factors; organized the litera-
ture into first-, second-, and third-generation etiological studies; and pro-
posed a multifactorial model of the complex etiology of BPD consistent
with their conclusion that individuals follow “a unique pathway to the de-
velopment of BPD that is a painful variation on an unfortunate but famil-
iar theme” (Zanarini & Frankenburg, p. 93). They describe (a) Kernberg’s
(1975) conception of the term “borderline” as a level of personality dis-
organization descriptive of the most serious form of character pathology;
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